My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) My entire life has been turned upside down. Pretty much any of the diets listed there will be at least somewhat beneficial. The thyroid gland is the only tissue in the body that takes up and holds onto iodine. my RAI, i have rough horsey voice also for a month . It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). At that time my numbers were so low I was experiencing eye problems. My question is what if I do radiation while my thyroid isnt hyperactive? fresh bread. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. I know it Hass to be because it started affecting me as soon as I Started losing weight and before I had been diagnosed. I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. I have been diagnosed with Mitral Valve Prolapse, asthma, arthritis, allergies, MCS, auto-immune thyroid disease, etc. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. I have a quick question. Most people who get radioactive iodine treatment do so because they are considered to be hyperthyroid (sometimes people get RAI for thyroid cancer (5) but most people get it for hyperthyroidism). As it turned out, my fears, or premonitions were right. Since then I have suffered most every day with severe chemical sensitivity. Just have my RAI 2days ago. Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. Claim Your Free eBook Now. Lowered heart rate. Alpha Lipoic Acid (ALA) and Thyroid Health: Is it Safe to Use? In the mean time, Im feeling worse about myself than with this original post. After Your Radioactive Iodine Treatment Getting home. I had never been to endocrinology prior and had no idea about thyroid function. You wouldnt want to use a steroid on it unless you know what it is. Dont let this be of major concern to you, though, because in most cases these symptoms can be managed. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. The hardest time I had and have with my diet is getting hospital dietitian to understand that vegan/plant based does not mean fish and chicken are allowed. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. SHBG :43 (16-55) Radioactive iodine treatment. Restart Medical LLC. and seriously lethargic?! Dr. Yash Khanna answered. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? Rinse your hair with warm water and shampoo it. can i color my hair after radioactive iodinesvetlana invitational 2022 Consultation Request a Free Consultation Now. It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. You might need contrast when you are having an X-ray, CT, MRI, or ultrasound exam. Will you be able to lead a normal life? I expect to be back to probably about 60 to maybe 70% and that is pushing it. Warm shades on cool undertones can make you look washed out or dull. Iodine is a mineral that your thyroid uses to create thyroid hormone. I dont want radiation therapy especially as she hasnt even told me what caused this. I am already over weight and working on losing it. But it does increase your risk of weight gain if you have the procedure by about 2 to 3 times. Potassium iodide (KI) is a type of iodine that is not radioactive and can be used to help block one type of radioactive material, radioactive iodine (I-131), from being absorbed by the thyroid. Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. The I-131 leaves your body through your urine primarily. 20 I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. Approximately 90% of people who take radioactive iodine to treat hyperthyroidism need only one dose, although it may take up to 6 months for it to fully work. This is of particular concern because this can lead to internal uptake with the radioactive iodine then accumulating in their thyroids. Thyroid Hormone Resistance: What is it & How to Diagnose it. Have you ever heard of this before? Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. Hello Dr .Child Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. Importance: Patients who undergo radiographic studies with contrast receive an enormous bolus of iodine. My health is anything but wonderful. I have my EMG the end of the month and take things from there. Answer (1 of 9): I have direct experience with this question because my wife had radioactive iodine treatment for her thyroid cancer and she was supposed to stay away from me and our parrots for 3 days until the radioactive iodine dissipated from her system. To keep my glucose readings at or below 120, the desired reading by my PCP and endocrinologist, I am strict to my vegan/plant based diet, and consume 600 to 800 calories per day. Can You Eat Soy If You Have a Thyroid Condition? Your concerns should be taken seriously and evaluated. Too much of this hormone can lead to [] What Is a Radioactive Iodine Uptake Test? If it doesnt go away then you have your answer, and if it does go away then you also have your answer. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. She enjoys giving lectures and writing articles for both the lay public and medical audiences. Thanks Doctor please, I had private clinic blood test after RAI sir this was the result:17 may 2017 :DHEA:11.020(0.44-13.00) I was put on Levothyroxine 175, then when I met my endocrinologist, by that time TSH levels had dropped some so Levothyroxine down to 137. The relationship between your thyroid to your hair growth aside, iodine . Get my free thyroid downloads, resources, and PDFs here. This is usually put into pill form for patients to ingest. 3 weeks after I was taken off of PTU. The connection between your weight gain and hyperthyroidism is explained here: https://www.restartmed.com/methimazole-weight-gain/. But if you're having radiation to the head and neck area and experience hair loss, it's best to wait a few months after your hair has grown back. You can read more about my own personal health journey and why I am so passionate about what I do. What is your life going to be like after radioactive iodine treatment? No. What can I be looking at regarding weight gain. I feel good, but still struggling with tiredness and some weight gain (some weight gain due to post menopause). Improving gut function can be done through diet and supplements. So, now my doctor told me a list of things to expect over the next while. Havent met yet my endoc after the RAI. It may sound counterintuitive, but youll understand why you might want to after your procedure. The cold also affects me if its too cold I really get cold but thinking back I pretty much think I was always like that with cold. I would take a look at this article for more information on why people gain weight after RAI: https://www.restartmed.com/hyperthyroidism-weight-gain/, You can also find some tips for weight loss in this article (even though it is more specific to thyroidectomy): https://www.restartmed.com/weight-loss-thyroidectomy/, After the treatments, How fast do the weight begin to add in the pounds. I was being treated for hypothyroidism and graves . P.S. Youll still need to get those but the supplements can be used in addition to them. Several of my siblings make fun of me and say I am hiding but dont even know what Graves disease is and I was not around them and did not share my health issues until recently with them. I had a lot of hair loss right after my thyroidectomy. I had radiation iodine therapy in late September. I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. I felt well on this level. I think that she was supposed to maint. It is what it is. Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. Ultrasound can also be performed if . Told to me by each and everyone whos never had this cancer! . Please help! 8PM HS snack and VS and glucose readings. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. I wish I had found it weeks ago, but I didnt so I have to move on. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. She said I am normal and not to worry. Radioactive iodine (often abbreviated RAI) is a therapy used to treat hyperthyroidism and thyroid cancer. I have Graves Disease and lost 40 pounds. Free T4. But, I am having a lots of rashes all over my neck and scalp, it got swollen and bumps. Thyroid Ultrasound: A thyroid gland impacted by Graves' disease is often enlarged and may have increased blood flow; both of these elements can be visualized by thyroid ultrasound. my husband had the iodine radiation, for Graves disease. The study followed people for 26 years after two or more treatments. For this reason, its ideal to try and lose weight prior to the procedure as opposed to after. . I'm Dr. Westin Childs. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. I have spoken to my doctor about it but he doesnt care. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. There are 37 known isotopes isotopesA form of an element that has the same number of protons but a different number of neutrons in the nucleus, giving it a different atomic mass. When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. American Thyroid Association. Be particularly careful around infants and children, who are especially at risk for exposure complications. I eat three meals with three snack times. You are very welcome, I hope you find the information helpful! The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. Or longer The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! Looking forward to your feedback . They are planning radioactive iodine in the future. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? olive oil, vegetable oils and nut oils. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. When we are deficient in this nutrient, the health of our hair is affected, leading to hair weakness or even total hair loss. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. Commentdocument.getElementById("comment").setAttribute( "id", "a7703e5f38024655a2d5bbdddbfa13ec" );document.getElementById("bc952adef4").setAttribute( "id", "comment" ); Hey There! Need better symptom control? I has RIT approx. Yes I took the radation iodine pill five days ago what can I take for itchy skin I got some cortisone will that help. 240-760-6600. I have my thyroid ablated about 20 so years ago. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. If a person with a health thyroid intakes the I131, it will damage their . Like the effects of chemotherapy, hair follicles and new hair are more delicate and prone to . 12 noon, lunch and VS with glucose readings. This means avoiding public transportation, hotels, carpools, and in some cases, your workplace. Foods to Avoid if you Have Thyroid Problems: Ive found that these 10 foods cause the most problems for thyroid patients. can i color my hair after radioactive iodinehtml5 interactive animation. After that they again were having the same symptoms. Hi The presence of any of these symptoms AFTER your procedure (especially if you didnt have them prior to your procedure) may be an early indication that your thyroid medication is not optimized. The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. Radioactive iodine may also affect a woman's ovaries, and some women may have irregular periods for up to a year after treatment. Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. I was wondering can I color my hair at a salon. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. I am considering following up with the endocrinologist in the morning. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. It sounds like you are being underdosed based on your TSH level. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. Question. My supplements can help but they will not take the place of thyroid medications like levothyroxine. #4. Anna Thomas. If you drive home after your appointment and there's another . No, you won't lose your hair after a radioactive iodine treatment. Learn which foods you should avoid if you have thyroid disease of any type. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. This is probably not what you want to hear, especially if this is a procedure that is necessary for your health, but its still important to know about it. (Pat). Should you expect to live a normal life afterward? The radiation comes from a radioactive substance called iodine-131. and my being a nurse, Im researching and learning all I can. June 10, 2022 . If you dont have thyroid hormone at all then you risk the chance of coma and death. They do this by either stopping your oral thyroid medication or giving you thyrogen. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. Iodine is also sometimes prescribed as a topical treatment for certain conditions that cause hair loss on the scalp. 1. Your thyroid gland absorbs nearly all of the iodine in your body. So, I ate what I could and left the rest. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . They said it was Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ Until that time, you will give off radiation in your sweat, your saliva, your urine, and anything else that comes out of your body. After you get the dose, the scanner checks your entire body for signs of radioactivity. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything.